I am a 31 year-old woman expecting a baby boy in early October. I live with my boyfriend and we have been ecstatic to be having our first child even though we had planned to wait until after we get married. I work for the local hospital making about $30,000 per year as a family support worker. My boyfriend, Chris, is an accountant and makes a bit more than me at about $45,000 per year. We both love our jobs but we are a little tight on finances due to our student loans. I am also finishing up my Master’s degree and will soon be having those loans to add to the pile. We live close to both of our families and are hoping to get a lot of help and guidance from them as we raise our son, Jack.
After having a non-stress test and subsequent following tests, we found out that our baby boy has a malformation in his lung, called congenital lung malformation. Because of my own childhood history of severe asthma I am blaming myself for this condition occurring in Jack. I am completely beside myself because I know that we will likely have to have surgery to correct the malformation. The doctors have explained that doing surgery once he is born may help before it takes over his chest causing problems with oxygen levels and issues with blood flow to other organs. Even though our family speaks English, this all seems like a foreign language of medical terms to me. It feels like I need a translator to explain what I need to do to help my son live a healthy life. I am also scared that other conditions/issues may have erupted due to any lack of oxygen to his body. I have taken such good care of my body during this pregnancy. How could this be happening to our baby boy?
Chris and I were planning to take Jack to the child care center where my sister works once he is old enough to attend. However, given his lung condition, we will have to wait to determine if it will be safe and appropriate care for him. Given the amount of illnesses that can run through a child care center I am scared Jack will be more susceptible to getting an infection which may lead to pneumonia much more easily. What if his lung causes severe asthma where an attack can cause difficulty breathing at a moment’s notice? Will the staff be able to handle something like this?
Now that we are aware of this condition, Chris and I must take a look at how we will prepare for Jack’s arrival in just over a month. First we must look at who will be caring for Jack’s health. We need to work closely with his pediatrician and discuss steps in setting up care with a pediatric pulmonologist. I also think we will need to make sure that we have someone who will help us understand the medical terms and steps that we will be taking in the near future. After I am released from maternity leave, how will we ensure that Jack is properly cared for? If I quit my job to stay home with him we will lose the good medical coverage with the hospital. Maybe I can have our parents care for him during the day while we work (although they also work full-time jobs). Is there a day care service for children with special needs in this area? Or can I somehow ensure that his teachers are properly trained with his medical needs? Someone please help me find our way through what is about to come!
Questions/Concerns
I believe this hypothetical family situation is very realistic. I have based it mainly on my current family situation because it is what truly may happen. While I have considered the future of a family with my boyfriend, I have not thought about some of our own health conditions that may affect our own child, which is how I came across the condition of congenital lung malformation. Given the details of my hypothetical family situation please provide any insight you have. I appreciate the advice and suggestions J
Have I given a complete picture of my family, or are there details missing that I should include in order to complete the assignment successfully? If so, what are your suggestions?
Are there any specific websites I should be reviewing with regard to learning about quality services and programs for my child and family in this hypothetical family situation?
Does anyone have any thoughts, based on my specific family situation, that will affect the early childhood system I am creating?
References